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Thread: Life-Threatening Illness & Reality Check

  1. #451
    Cyburbian Michele Zone's avatar
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    That sucks. Sorry to hear it.

  2. #452
    Super Moderator kjel's avatar
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    Quote Originally posted by dandy_warhol View post
    just got home from a 4 night stay in the hospital. i had/have a Pulmonary Embolism as the result of a DVT that broke apart.

    i'm ok. home from work for a week, on blood thinners for at least 6 months.

    and the Dr. said most likely my days of playing soccer are over (concern over another blood clot.)
    Sorry to hear this dandy. Take care of yourself and stick to your regimen of blood thinners religiously between maintaining your diet and going in for your PT tests. Check with the docs about flying any time soon.
    "He defended the cause of the poor and needy, and so all went well. Is that not what it means to know me?" Jeremiah 22:16

  3. #453
    Cyburbian Plus
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    My A1C was 6.6.
    Meter average 133 - combination of pre and post meal.

    Went to the Podiatrist for a damaged toe nail - foot care is important for diabetics.
    Oddball
    Why don't you knock it off with them negative waves?
    Why don't you dig how beautiful it is out here?
    Why don't you say something righteous and hopeful for a change?
    From Kelly's Heroes (1970)


    Are you sure you're not hurt ?
    No. Just some parts wake up faster than others.
    Broke parts take a little longer, though.
    From Electric Horseman (1979)

  4. #454
    Chairman of the bored Maister's avatar
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    Quote Originally posted by JNA View post
    My A1C was 6.6.
    Meter average 133 - combination of pre and post meal.
    That's pretty good. Keep up with the good control.
    People will miss that it once meant something to be Southern or Midwestern. It doesn't mean much now, except for the climate. The question, “Where are you from?” doesn't lead to anything odd or interesting. They live somewhere near a Gap store, and what else do you need to know? - Garrison Keillor

  5. #455
    Cyburbian Plus Salmissra's avatar
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    Dandy,

    I hope you are doing better now. Keep on the blood thinners, and keep us posted!!
    "We do not need any other Tutankhamun's tomb with all its treasures. We need context. We need understanding. We need knowledge of historical events to tie them together. We don't know much. Of course we know a lot, but it is context that's missing, not treasures." - Werner Herzog, in Archaeology, March/April 2011

  6. #456
    Super Moderator kjel's avatar
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    Quote Originally posted by JNA View post
    My A1C was 6.6.
    Meter average 133 - combination of pre and post meal.

    Went to the Podiatrist for a damaged toe nail - foot care is important for diabetics.
    Way to go from a fellow finger sticker. (Keep crude comments to self)
    "He defended the cause of the poor and needy, and so all went well. Is that not what it means to know me?" Jeremiah 22:16

  7. #457
    Cyburbian
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    Quote Originally posted by dandy_warhol View post
    just got home from a 4 night stay in the hospital. i had/have a Pulmonary Embolism as the result of a DVT that broke apart.

    i'm ok. home from work for a week, on blood thinners for at least 6 months.

    and the Dr. said most likely my days of playing soccer are over (concern over another blood clot.)
    Hey Dandy -- I've had a PE and several DVT episodes in both my 20's and now in my 30's. PM me if you want more information. Did they do a genetic test to see if you have a disorder?

    Your doctor is a nutjob if he/she is making a recommendation to stop playing sports -- in fact, activity will really help you avoid future DVTs. They might want you to watch yourself for a few weeks until the risk of another PE is over. Get yourself to a good hematologist as soon as you can!

  8. #458
    Cyburbian Emeritus Bear Up North's avatar
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    I noticed that the kid who has cancer (and was on the run with his Mom for awhile, to escape treatment) has Hodgkin's Lymphoma. That is the same thing that this Bear is stuck with.

    It is (usually) very curable with treatment. Took a lot of treatment for me (radiation, chemo, bone marrow transplant) but my case was a bit extreme. The kid will most likely go through about a dozen chemo treatments and be "good to go".

    I wish him well.
    _____

    Having a hard time deciding how I feel about "forced treatment". As a parent, you should have the right to make the decisions for your children. However, as a parent you have the responsibility to protect your children from harm.

    I see pros and cons on both sides.

    Bear
    Occupy Cyburbia!

  9. #459
    Cyburbian Michele Zone's avatar
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    Quote Originally posted by Bear Up North View post
    I noticed that the kid who has cancer (and was on the run with his Mom for awhile, to escape treatment) has Hodgkin's Lymphoma. That is the same thing that this Bear is stuck with.
    <snip>

    Having a hard time deciding how I feel about "forced treatment". As a parent, you should have the right to make the decisions for your children. However, as a parent you have the responsibility to protect your children from harm.

    I see pros and cons on both sides.

    Bear
    I haven't read any of the articles about this, though "forced treatment" has been mentioned on some list I belong to, so I assume they were talking about this case (though maybe not).

    FWIW/food for thought:
    I get a lot of flack at times for the fact that I and my oldest son (who also has CF) have not seen a doctor in recent years. We haven't been to one because they have nothing to offer us. My CF specialist in California told me bluntly "People like you don't get well. Symptom management is the name of the game." My son is nearly 22. Although he lives with me and is a legal dependent, he is an adult and chose of his own volition to stop seeing doctors when he turned 18. Getting him to a doctor would likely involve physical force of a sort that I can't provide and wouldn't want to if I could. We are getting well but the detail that we don't go to doctors has been decried and made overly much of in some places on the internet. People who go see doctors and aren't getting well are the ones who make it out to be a huge scandal and imply that I am a bad mom who is "medically neglecting" my (adult) child with CF.

    I faced similar issues (concerns) with homeschooling. It is clear to me and my sons that I was able to help them with their learning disabilities far more than any school could. I saw big gains. But they aren't going to stop having those issues just because I taught them to cope well. It would be easy for a school system to test my kids, find their deficiencies, and accuse me of "educational neglect". I needed a good deal of time to find something that worked well for them and there was a certain amount of "failure" involved while searching for what worked. That doesn't look too good as a defense when inspected by people who have a different mental model for what is going on and happen to be members or The Establishment and view my methods as "all wrong".

    Maybe the mom in the case you mention wouldn't have gotten her kid well. But there is no guarantee doctors would either. The main difference is that if she fails, she gets accused of killing him by not trying but if doctors fail, they get let off the hook and the blame gets laid squarely on the disease (even in cases where they clearly aren't trying, as with CF where doctors routinely tell their patients to "accept the inevitable" and with every decline in health patients and their families are told "it's the normal progression of CF").

    Again, I didn't read the articles. Maybe she wasn't trying to get him well. So let's not lambast me over that detail. m'kay?
    Last edited by Michele Zone; 29 May 2009 at 6:43 AM. Reason: typo

  10. #460
    Cyburbian imaplanner's avatar
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    Quote Originally posted by imaplanner View post
    Just re-read this entire thread. I hope your tests go good Bear. As you know (I don't think I posted about this but I pm'd u about it) my wife was diagnosed with Hodgkins last January and went through ABVD, which is the standard. She was found to have completely responded during the mid-treatment scans, but recently had her regular three month follow up pet scan (the first one since finishing treatment) which shows Hodgkins returned. She now will be going through the stem cell transplant much like you did. I'll probably pm you with some questions at some point.
    My wife has undergone and successfully recovered from the stem cell transplant. Seems like the transplant itself was not so much of a big deal its the chemo they give you before the transplant that is the difficult part. I've never seen anyone that sick before. But she's now back at work and has her follow up pet scan next week (keeping fingers crossed).

  11. #461
    Cyburbian Emeritus Bear Up North's avatar
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    Perhaps the mods should merge this thread with the Procrastination thread. I am soooooooooooo bad at following-up on medical appointments. I keep telling myself, "Well.....as soon as this insert whatever here is over I will make the calls and get going on the tests."

    I must have a death wish.



    Bear
    Occupy Cyburbia!

  12. #462
    Cyburbian Michele Zone's avatar
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    Quote Originally posted by Bear Up North View post
    Perhaps the mods should merge this thread with the Procrastination thread. I am soooooooooooo bad at following-up on medical appointments. I keep telling myself, "Well.....as soon as this insert whatever here is over I will make the calls and get going on the tests."

    I must have a death wish.



    Bear
    insert whatever here. Um, you sure you don't want to change that wording. This is Cyburbia, you know.

  13. #463
    Cyburbian Emeritus Bear Up North's avatar
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    Update

    This Bear is a physical wreck. Making a new commitment to better diet and more exercise. I also need better sleep. But that is related to one of my issues. I am tired of issues. I wanna be 35 again. Waa.



    Update.....

    Hodgkins Lymphoma. (Radiation, chemo, bone marrow transplant.....success!) (Probably)
    Recently diagnosed a pre-Diabetic. Blood sugar has been running on the high side. Starting lifestyle changes.
    Very dry eyes. (Take a supplement and use drops. Especially bad at night.)
    Enlarged prostate. Typical for a 61-year old male. Taking a pill to reduce the nighttime walks to the head. Pill not working. Sleep deprivation.
    Raynaud's Disease. Also known as "white fingers". Especially when fingers are cold or have touched something cold.
    Collapsed finger. Fingers, again. (Not sure about this. Heading for doctor next week. Perhaps circulation or blood sugar related.)
    Dizzy spells. About once a week. Probably related to drug I take for the prostate issue. (Side effect.)
    Seeing double. This just started about a week ago. Happened 3 times. Probably related to the diabetic thing.
    Lung capacity at 66%....due to radiation and chemo.

    When I was about 20, I was convinced that I would not make it to 35. I figure that I can feel good about beating the odds.

    Bear
    Occupy Cyburbia!

  14. #464
    Your very existence and thoughts brighten up a lot of peoples' lives. Hang in there!

  15. #465
    Cyburbian Cardinal's avatar
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    The good thing about seeing double is that it makes it easier to eat only half of what is in front of you. That's a good thing for a diabetic.
    Anyone want to adopt a dog?

  16. #466
    Cyburbian Plus
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    Is my Mom getting a pacemaker a big deal ?
    Oddball
    Why don't you knock it off with them negative waves?
    Why don't you dig how beautiful it is out here?
    Why don't you say something righteous and hopeful for a change?
    From Kelly's Heroes (1970)


    Are you sure you're not hurt ?
    No. Just some parts wake up faster than others.
    Broke parts take a little longer, though.
    From Electric Horseman (1979)

  17. #467
    Cyburbian Plus
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    A1C - 6.8
    Meter Average - 131

    Cholesterol - 119 but I am taking Lipitor.
    Oddball
    Why don't you knock it off with them negative waves?
    Why don't you dig how beautiful it is out here?
    Why don't you say something righteous and hopeful for a change?
    From Kelly's Heroes (1970)


    Are you sure you're not hurt ?
    No. Just some parts wake up faster than others.
    Broke parts take a little longer, though.
    From Electric Horseman (1979)

  18. #468
    I envy people on statins! Low cholesterol levels and they have an excuse not to eat grapefruit.

  19. #469
    Cyburbian dandy_warhol's avatar
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    Quote Originally posted by dandy_warhol View post
    just got home from a 4 night stay in the hospital. i had/have a Pulmonary Embolism as the result of a DVT that broke apart.

    i'm ok. home from work for a week, on blood thinners for at least 6 months.

    and the Dr. said most likely my days of playing soccer are over (concern over another blood clot.)

    Went for my post PE, post-Coumadin blood work yesterday. The Dr. gave me a clean bill of health. He thinks the PE & DVTs were a result of the birth control I was on. I was on BCP for 12 years. Then I switched to nuva-ring and in less than a year I had the PE. For those of you with loved ones on BC/nuva-ring, be mindful. I didn't meet any of the high-risk factors but still ended up in the hospital.

    The Dr. okayed me to return to soccer. I have a game on Friday.
    In the end, we will remember not the words of our enemies, but the silence of our friends. -Martin Luther King Jr.

  20. #470
    Cyburbian PrahaSMC's avatar
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    Deleted: Whoops, wrong forum.

  21. #471
    Cyburbian Emeritus Bear Up North's avatar
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    2010 - The Tests Are Coming !!!!

    Ack!

    Here comes 2010 and here comes a barrage of medical tests. Gotta figure out just what is going on with this ole Bear's body. Just made the appointments for early January tests.....

    Carotid Artery Scan
    CT of the brain
    Tilt-Table test

    These are related to my problem with dizziness and seeing double.....seeing double.

    More tests later in the early part of the year related to my Lymphoma. Procrastinated long enough. Wish me luck.

    Oh.....mandatory video attached.....from one of my favorite late 1960s albums,Blood, Sweat & Tears. Because you never know.

    http://www.youtube.com/watch?v=z9Omtd44Y-s

    Bear
    Occupy Cyburbia!

  22. #472
    Super Moderator luckless pedestrian's avatar
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    I literally just came back to the office from having some cysts looked at (in the girls, yes) and "they appear to be benign" - I came back to a stack of phone calls, about 12 emails most of them requiring immediate feedback and are laced with anger, and a to do list that's pretty overwhelming - I also ran into my boss in the hall who launched in a tirade at me about how the Council is upset about the manner I am handling some ordinance issues and a voicemail message from my clinical spouse asking me does this mean I will finally give up caffeine

    I don't know how people get through stressful workdays when it is not benign but is malignant because all I want to do is get out of here right now but I can't because oh yeah, I have a budget hearing at 5 and my department budget got slashed so I can't leave

    I know I am very lucky but I'm just sitting in some after shock and wanted to call attention to folks who aren't so lucky but still have to get through the day

  23. #473
    Cyburbian Plus Salmissra's avatar
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    Quote Originally posted by dandy_warhol View post
    Went for my post PE, post-Coumadin blood work yesterday. The Dr. gave me a clean bill of health. He thinks the PE & DVTs were a result of the birth control I was on. I was on BCP for 12 years. Then I switched to nuva-ring and in less than a year I had the PE. For those of you with loved ones on BC/nuva-ring, be mindful. I didn't meet any of the high-risk factors but still ended up in the hospital.

    The Dr. okayed me to return to soccer. I have a game on Friday.
    Congrats on the clean bill of health!

    My sister just got out of the hospital for the same thing - in her hip. She couldn't walk, etc without the fear of the clot dislodging and traveling. One week out, and she is doing better. Blood thinners, pain meds, and my mother doing all her housework for a while helps. Actually, her first post-hospital visit, they cut back her blood thinners because she was more than twice as "thin" as recommended (norm is about a 3, she was over 7). She took herself to the emergency room, and they were shocked that her travelingfor the holidays hadn't dislodged it already.

    Quote Originally posted by luckless pedestrian View post
    I literally just came back to the office from having some cysts looked at (in the girls, yes) and "they appear to be benign" - I came back to a stack of phone calls, about 12 emails most of them requiring immediate feedback and are laced with anger, and a to do list that's pretty overwhelming - I also ran into my boss in the hall who launched in a tirade at me about how the Council is upset about the manner I am handling some ordinance issues and a voicemail message from my clinical spouse asking me does this mean I will finally give up caffeine
    I don't know how people get through stressful workdays when it is not benign but is malignant because all I want to do is get out of here right now but I can't because oh yeah, I have a budget hearing at 5 and my department budget got slashed so I can't leave
    I know I am very lucky but I'm just sitting in some after shock and wanted to call attention to folks who aren't so lucky but still have to get through the day
    Wow *sending you a virtual hug*
    Last edited by Maister; 22 Jan 2010 at 10:03 AM. Reason: sequential posts
    "We do not need any other Tutankhamun's tomb with all its treasures. We need context. We need understanding. We need knowledge of historical events to tie them together. We don't know much. Of course we know a lot, but it is context that's missing, not treasures." - Werner Herzog, in Archaeology, March/April 2011

  24. #474
    Cyburbian Plus
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    Quote Originally posted by luckless pedestrian View post
    having some cysts looked at (in the girls, yes)
    My cousin she had them too ended up having the "H" to remove them.
    She did not really mind because she has 2 grown kids and was over 40.
    Oddball
    Why don't you knock it off with them negative waves?
    Why don't you dig how beautiful it is out here?
    Why don't you say something righteous and hopeful for a change?
    From Kelly's Heroes (1970)


    Are you sure you're not hurt ?
    No. Just some parts wake up faster than others.
    Broke parts take a little longer, though.
    From Electric Horseman (1979)

  25. #475
    Super Moderator luckless pedestrian's avatar
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    Quote Originally posted by JNA View post
    My cousin she had them too ended up having the "H" to remove them.
    She did not really mind because she has 2 grown kids and was over 40.
    Thank you for making me laugh - I meant the "other" "girls"

    where's RJ or The One when I need them?

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