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Life-Threatening Illness & Reality Check

kjel

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just got home from a 4 night stay in the hospital. i had/have a Pulmonary Embolism as the result of a DVT that broke apart. :-c

i'm ok. home from work for a week, on blood thinners for at least 6 months.

and the Dr. said most likely my days of playing soccer are over (concern over another blood clot.)

Sorry to hear this dandy. Take care of yourself and stick to your regimen of blood thinners religiously between maintaining your diet and going in for your PT tests. Check with the docs about flying any time soon.
 

JNA

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My A1C was 6.6. :)
Meter average 133 - combination of pre and post meal.

Went to the Podiatrist for a damaged toe nail - foot care is important for diabetics.
 

Salmissra

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Dandy,

I hope you are doing better now. Keep on the blood thinners, and keep us posted!!
 

kjel

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My A1C was 6.6. :)
Meter average 133 - combination of pre and post meal.

Went to the Podiatrist for a damaged toe nail - foot care is important for diabetics.

Way to go from a fellow finger sticker. (Keep crude comments to self)
 

southsideamy

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just got home from a 4 night stay in the hospital. i had/have a Pulmonary Embolism as the result of a DVT that broke apart. :-c

i'm ok. home from work for a week, on blood thinners for at least 6 months.

and the Dr. said most likely my days of playing soccer are over (concern over another blood clot.)

Hey Dandy -- I've had a PE and several DVT episodes in both my 20's and now in my 30's. PM me if you want more information. Did they do a genetic test to see if you have a disorder?

Your doctor is a nutjob if he/she is making a recommendation to stop playing sports -- in fact, activity will really help you avoid future DVTs. They might want you to watch yourself for a few weeks until the risk of another PE is over. Get yourself to a good hematologist as soon as you can!
 

Bear Up North

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I noticed that the kid who has cancer (and was on the run with his Mom for awhile, to escape treatment) has Hodgkin's Lymphoma. That is the same thing that this Bear is stuck with.

It is (usually) very curable with treatment. Took a lot of treatment for me (radiation, chemo, bone marrow transplant) but my case was a bit extreme. The kid will most likely go through about a dozen chemo treatments and be "good to go".

I wish him well.
_____

Having a hard time deciding how I feel about "forced treatment". As a parent, you should have the right to make the decisions for your children. However, as a parent you have the responsibility to protect your children from harm.

I see pros and cons on both sides.

Bear
 
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I noticed that the kid who has cancer (and was on the run with his Mom for awhile, to escape treatment) has Hodgkin's Lymphoma. That is the same thing that this Bear is stuck with.
<snip>

Having a hard time deciding how I feel about "forced treatment". As a parent, you should have the right to make the decisions for your children. However, as a parent you have the responsibility to protect your children from harm.

I see pros and cons on both sides.

Bear

I haven't read any of the articles about this, though "forced treatment" has been mentioned on some list I belong to, so I assume they were talking about this case (though maybe not).

FWIW/food for thought:
I get a lot of flack at times for the fact that I and my oldest son (who also has CF) have not seen a doctor in recent years. We haven't been to one because they have nothing to offer us. My CF specialist in California told me bluntly "People like you don't get well. Symptom management is the name of the game." My son is nearly 22. Although he lives with me and is a legal dependent, he is an adult and chose of his own volition to stop seeing doctors when he turned 18. Getting him to a doctor would likely involve physical force of a sort that I can't provide and wouldn't want to if I could. We are getting well but the detail that we don't go to doctors has been decried and made overly much of in some places on the internet. People who go see doctors and aren't getting well are the ones who make it out to be a huge scandal and imply that I am a bad mom who is "medically neglecting" my (adult) child with CF.

I faced similar issues (concerns) with homeschooling. It is clear to me and my sons that I was able to help them with their learning disabilities far more than any school could. I saw big gains. But they aren't going to stop having those issues just because I taught them to cope well. It would be easy for a school system to test my kids, find their deficiencies, and accuse me of "educational neglect". I needed a good deal of time to find something that worked well for them and there was a certain amount of "failure" involved while searching for what worked. That doesn't look too good as a defense when inspected by people who have a different mental model for what is going on and happen to be members or The Establishment and view my methods as "all wrong".

Maybe the mom in the case you mention wouldn't have gotten her kid well. But there is no guarantee doctors would either. The main difference is that if she fails, she gets accused of killing him by not trying but if doctors fail, they get let off the hook and the blame gets laid squarely on the disease (even in cases where they clearly aren't trying, as with CF where doctors routinely tell their patients to "accept the inevitable" and with every decline in health patients and their families are told "it's the normal progression of CF").

Again, I didn't read the articles. Maybe she wasn't trying to get him well. So let's not lambast me over that detail. m'kay?
 
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imaplanner

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Just re-read this entire thread. I hope your tests go good Bear. As you know (I don't think I posted about this but I pm'd u about it) my wife was diagnosed with Hodgkins last January and went through ABVD, which is the standard. She was found to have completely responded during the mid-treatment scans, but recently had her regular three month follow up pet scan (the first one since finishing treatment) which shows Hodgkins returned. She now will be going through the stem cell transplant much like you did. I'll probably pm you with some questions at some point.

My wife has undergone and successfully recovered from the stem cell transplant. Seems like the transplant itself was not so much of a big deal its the chemo they give you before the transplant that is the difficult part. I've never seen anyone that sick before. But she's now back at work and has her follow up pet scan next week (keeping fingers crossed).
 

Bear Up North

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Perhaps the mods should merge this thread with the Procrastination thread. I am soooooooooooo bad at following-up on medical appointments. I keep telling myself, "Well.....as soon as this insert whatever here is over I will make the calls and get going on the tests."

I must have a death wish.

:-c;):-$

Bear
 
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Perhaps the mods should merge this thread with the Procrastination thread. I am soooooooooooo bad at following-up on medical appointments. I keep telling myself, "Well.....as soon as this insert whatever here is over I will make the calls and get going on the tests."

I must have a death wish.

:-c;):-$

Bear
insert whatever here. Um, you sure you don't want to change that wording. This is Cyburbia, you know.
 

Bear Up North

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Update

This Bear is a physical wreck. Making a new commitment to better diet and more exercise. I also need better sleep. But that is related to one of my issues. I am tired of issues. I wanna be 35 again. Waa.

:-c:-$:not:

Update.....

Hodgkins Lymphoma. (Radiation, chemo, bone marrow transplant.....success!) (Probably)
Recently diagnosed a pre-Diabetic. Blood sugar has been running on the high side. Starting lifestyle changes. :-c:-c:-c
Very dry eyes. (Take a supplement and use drops. Especially bad at night.)
Enlarged prostate. Typical for a 61-year old male. Taking a pill to reduce the nighttime walks to the head. Pill not working. Sleep deprivation.
Raynaud's Disease. Also known as "white fingers". Especially when fingers are cold or have touched something cold.
Collapsed finger. Fingers, again. (Not sure about this. Heading for doctor next week. Perhaps circulation or blood sugar related.)
Dizzy spells. About once a week. Probably related to drug I take for the prostate issue. (Side effect.)
Seeing double. This just started about a week ago. Happened 3 times. Probably related to the diabetic thing.
Lung capacity at 66%....due to radiation and chemo.

When I was about 20, I was convinced that I would not make it to 35. I figure that I can feel good about beating the odds.

Bear
 

Cardinal

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The good thing about seeing double is that it makes it easier to eat only half of what is in front of you. That's a good thing for a diabetic.
 

JNA

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A1C - 6.8 :-$
Meter Average - 131

Cholesterol - 119 but I am taking Lipitor. :)
 

dandy_warhol

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just got home from a 4 night stay in the hospital. i had/have a Pulmonary Embolism as the result of a DVT that broke apart. :-c

i'm ok. home from work for a week, on blood thinners for at least 6 months.

and the Dr. said most likely my days of playing soccer are over (concern over another blood clot.)


Went for my post PE, post-Coumadin blood work yesterday. The Dr. gave me a clean bill of health. He thinks the PE & DVTs were a result of the birth control I was on. I was on BCP for 12 years. Then I switched to nuva-ring and in less than a year I had the PE. For those of you with loved ones on BC/nuva-ring, be mindful. I didn't meet any of the high-risk factors but still ended up in the hospital.

The Dr. okayed me to return to soccer. I have a game on Friday. :D
 

Bear Up North

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2010 - The Tests Are Coming !!!!

Ack!

Here comes 2010 and here comes a barrage of medical tests. Gotta figure out just what is going on with this ole Bear's body. Just made the appointments for early January tests.....

Carotid Artery Scan
CT of the brain
Tilt-Table test

These are related to my problem with dizziness and seeing double.....seeing double. :-c;)

More tests later in the early part of the year related to my Lymphoma. Procrastinated long enough. Wish me luck.

Oh.....mandatory video attached.....from one of my favorite late 1960s albums,Blood, Sweat & Tears. Because you never know.

http://www.youtube.com/watch?v=z9Omtd44Y-s

Bear
 

luckless pedestrian

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I literally just came back to the office from having some cysts looked at (in the girls, yes) and "they appear to be benign" - I came back to a stack of phone calls, about 12 emails most of them requiring immediate feedback and are laced with anger, and a to do list that's pretty overwhelming - I also ran into my boss in the hall who launched in a tirade at me about how the Council is upset about the manner I am handling some ordinance issues and a voicemail message from my clinical spouse asking me does this mean I will finally give up caffeine

I don't know how people get through stressful workdays when it is not benign but is malignant because all I want to do is get out of here right now but I can't because oh yeah, I have a budget hearing at 5 and my department budget got slashed so I can't leave

I know I am very lucky but I'm just sitting in some after shock and wanted to call attention to folks who aren't so lucky but still have to get through the day
 

Salmissra

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Went for my post PE, post-Coumadin blood work yesterday. The Dr. gave me a clean bill of health. He thinks the PE & DVTs were a result of the birth control I was on. I was on BCP for 12 years. Then I switched to nuva-ring and in less than a year I had the PE. For those of you with loved ones on BC/nuva-ring, be mindful. I didn't meet any of the high-risk factors but still ended up in the hospital.

The Dr. okayed me to return to soccer. I have a game on Friday. :D

Congrats on the clean bill of health!

My sister just got out of the hospital for the same thing - in her hip. She couldn't walk, etc without the fear of the clot dislodging and traveling. One week out, and she is doing better. Blood thinners, pain meds, and my mother doing all her housework for a while helps. Actually, her first post-hospital visit, they cut back her blood thinners because she was more than twice as "thin" as recommended (norm is about a 3, she was over 7). She took herself to the emergency room, and they were shocked that her travelingfor the holidays hadn't dislodged it already.

I literally just came back to the office from having some cysts looked at (in the girls, yes) and "they appear to be benign" - I came back to a stack of phone calls, about 12 emails most of them requiring immediate feedback and are laced with anger, and a to do list that's pretty overwhelming - I also ran into my boss in the hall who launched in a tirade at me about how the Council is upset about the manner I am handling some ordinance issues and a voicemail message from my clinical spouse asking me does this mean I will finally give up caffeine
I don't know how people get through stressful workdays when it is not benign but is malignant because all I want to do is get out of here right now but I can't because oh yeah, I have a budget hearing at 5 and my department budget got slashed so I can't leave
I know I am very lucky but I'm just sitting in some after shock and wanted to call attention to folks who aren't so lucky but still have to get through the day

Wow :glum: *sending you a virtual hug*
 
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luckless pedestrian

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My cousin she had them too ended up having the "H" to remove them.
She did not really mind because she has 2 grown kids and was over 40.

Thank you for making me laugh - I meant the "other" "girls" ;)

where's RJ or The One when I need them?
 

dandy_warhol

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I literally just came back to the office from having some cysts looked at (in the girls, yes) and "they appear to be benign"...

Glad to hear they are benign! {{lp}}

Congrats on the clean bill of health!

My sister just got out of the hospital for the same thing - in her hip. She couldn't walk, etc without the fear of the clot dislodging and traveling. One week out, and she is doing better. Blood thinners, pain meds, and my mother doing all her housework for a while helps. Actually, her first post-hospital visit, they cut back her blood thinners because she was more than twice as "thin" as recommended (norm is about a 3, she was over 7). She took herself to the emergency room, and they were shocked that her travelingfor the holidays hadn't dislodged it already.

My thoughts are with your sister. For me it was kinda a surreal experience because I thought I was fine and the next thing I knew I was in the hospital and being told I was lucky to be alive. :-o

I ended up having to go for almost weekly lab work to check my levels. Some people stay fairly constant, mine wavered but I'm pretty sure that was because I kept eating my green leafy veggies (vitamin k).
 

Bear Up North

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Not good.

My carotid artery is very narrow, due to blockage. Going to the Vascular Surgeon on Monday to discuss "next step". Doc wants to see me Tuesday for another issue, relating to the Tilt-Table Test I took last week.

At this point I could say "Life sucks."

However, a life that sucks is much better than no life at all. Anybody wanna buy a huge fake city?

:-c:(:(:-c

Bear
 

Richmond Jake

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+o:)v:
...where's RJ or The One when I need them?

Praise the Lard, your twin towers are safe!! Do they need some form of special attention at this point? ( :D < because we don't have a boobie smilie)

_____________

ZG had a cyst lanced today. I almost lost my appetite when she described the procedure to me when I got home. +o( :victory:
No grabbing at the girls tonight. :(

_____________

I have a blood blister on the tip of my right big toe after stumbling out of the hot tub last night. It's throbbing.
 
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Otis

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BUN hang in there. My father had blocked arteries and they did a roto-rooter on him and he's fine. Wait to see what the vascular surgeon says. I'm sure there are options. :l::wine::l:

Do they need some form of special attention at this point? (

I think this something for all cyburbians to gather 'round and give "support." Perhaps we could meet for an itt-fest?
 
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Richmond Jake

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I think this something for all cyburbians to gather 'round and give "support." Perhaps we could meet for an itt-fest?

I think Otis has come onto something very special that we can all get on top of. This should become a global effort.
 

Otis

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^^^ Maybe, but it also was an insensitive and crude thing to say. I am deeply sorry for having said it. :-$ lp, please accept my apology and know that I want the best for you and truly send you my heartfelt hope that all turns out OK. :l::l::w:
 

luckless pedestrian

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are you kidding, I needed a laugh - it was just a weird day, I went from OMG something's wrong to "they look ok" (how does that happen) and then back to the ruins of the day

I was pointing (no pun intended) to people like Bear who live with illness, disease and/or chronic condition but still have to focus on work and family and life and my little (not a pun) day of a scare just hit me in empathy for them/him

Bear - thinking of you certainly today! :)
 

Otis

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Well, then OK. Let's all meet for the fest. I suggest we meet in RJ's town. But, wait, we can't! From the news I gather that he's banned this sort of thing. Poor planning, RJ.
 

Salmissra

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My coworker and friend was just diagnosed with uterine cancer.:-c:-c:-c She's going in for a complete removal and then any radiation treatment that may be needed.

She just turned 40. I'm in shock.
 

ofos

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My MIL went to the hospital with breathing difficulties. Scan showed a large mass interfering with lung expansion. Had biopsy late yesterday. Waiting on results. I foresee Mrs.ofos taking a trip to SoCal.
 

chrisinmd

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Not good.

My carotid artery is very narrow, due to blockage. Going to the Vascular Surgeon on Monday to discuss "next step". Doc wants to see me Tuesday for another issue, relating to the Tilt-Table Test I took last week.

At this point I could say "Life sucks."

However, a life that sucks is much better than no life at all. Anybody wanna buy a huge fake city?

:-c:(:(:-c

Bear


Bear--I had a heat attack a few years ago, I survived. They just fitted me with a couple of stints that open up my artery and I'm fine now. The operation to put in the stints is really nothing, you are awake and feel nothing. The worst part is that you have to lay flat on your back for about 3 hours after its over while the hole in your leg gets filled in. Its a small hole, about the size of a quarter, they put a plug in it.
Getting old really sucks but at least we're still around to cause some trouble now and then, Good luck.
 

ofos

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Mrs. ofos went to CA yesterday to be with her mother who was undergoing a biopsy today. Worst fears confirmed, it's C. Radiation is recommended to shrink the tumor to improve breathing but doctor says she doesn't have much time left. She's 75.
 

Bear Up North

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Mrs. ofos went to CA yesterday to be with her mother who was undergoing a biopsy today. Worst fears confirmed, it's C. Radiation is recommended to shrink the tumor to improve breathing but doctor says she doesn't have much time left. She's 75.

Sorry to hear that. Support from family members and/or friends is helpful....essential.....in dealing with serious disease.

Best wishes, given the circumstances.

Bear
 

TOFB

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Through Facebook over a three day period, I just witnessed a friend's rowdy and happy 50th birthday party, the sudden illness of his 17 year old son, the modest concern and inconvenience of him needing gall bladder surgery, a diagnosis of cancer, and death.

RIP Keegan.
 

Salmissra

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Mrs. ofos went to CA yesterday to be with her mother who was undergoing a biopsy today. Worst fears confirmed, it's C. Radiation is recommended to shrink the tumor to improve breathing but doctor says she doesn't have much time left. She's 75.

My thoughts are with you and Mrs. Ofos.
 

TexanOkie

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My 73-year-old father-in-law has been admitted an Oklahoma hospital for congestive heart failure related to having liquid buildup in his lungs (from a 2-week bout with pneumonia and strep throat). My wife is extremely distraught, and we are leaving Austin shortly to be there this weekend. I actually think my wife is in worse shape than my father-in-law, because the hospital let my father-in-law drive back home to pick up my mother-in-law and then come back to the hospital (if it was too serious, I doubt the medical staff would have allowed this). My wife, on the other hand, does not have any sense on how to cope with mortality within her family, and it's a topic that her family avoids like the plague despite her parents' health problems and ages.
 

Tresmo

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... My wife, on the other hand, does not have any sense on how to cope with mortality within her family, and it's a topic that her family avoids like the plague despite her parents' health problems and ages.

My thoughts are with you. I'm sure you're a great support for her, coming from a family that handles the subject like that. She surely needs it.
 

JNA

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Not good news for me -

NY Times Headline: Controversial Diabetes Drug Harms Heart, U.S. Concludes
http://www.nytimes.com/2010/02/20/health/policy/20avandia.html

The reports, obtained by The New York Times, say that if every diabetic now taking Avandia were instead given a similar pill named Actos, about 500 heart attacks and 300 cases of heart failure would be averted every month because Avandia can hurt the heart

I have been taking it for several years now, including when it was also combined as avandiament.
Continuation of the issue I posted in http://www.cyburbia.org/forums/showpost.php?p=384488&postcount=365
 
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kjel

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Not good news for me -

NY Times Headline: Controversial Diabetes Drug Harms Heart, U.S. Concludes
http://www.nytimes.com/2010/02/20/health/policy/20avandia.html



I have been taking it for several years now, including when it was also combined as avandiament.
Continuation of the issue I posted in http://www.cyburbia.org/forums/showpost.php?p=384488&postcount=365

Make sure you get checked out by your cardiologist. I had inquired about a possible change in diabetes meds and my doctor said he was leery of the potential side effects of the newer drugs and thankfully left me on metformin xr and just tweaked the dosage. I
 

TexanOkie

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My thoughts are with you. I'm sure you're a great support for her, coming from a family that handles the subject like that. She surely needs it.

I didn't mean for that to sound as callous as it reads...

While I am the more left-brain person in the relationship, I do do my best to support her emotionally in times like this.
 

Bear Up North

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Update

Been awhile since an update. I have some issues that have yet to be determined and solved. "Enjoyed" some tests on Monday of this week and I go for another on Monday next week. I continue to lose weight, but the pound shed has slowed way down. It had been 3-5 pounds every couple weeks, now it is a pound or two every month or so.

I still keep seeing double (a few times a week) and get dizzy (a few times a week). I have occasional bone pain, about pain level 3, so not a killer. But having bone pain worries me. Hope they can solve all of this. When I slid out of the U of M Hospital after my bone marrow transplant I was hoping to be able to bug Cyburbians for years. :p:D (It has been 5 years. :))

One of my employees (65 year male) lost almost 100 pounds, without trying. He is now going through tests at U of M Hospital. It is probably lymphoma, same as me. Nice guy. I am worried for him.

Bear
 

illinoisplanner

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Well, it's never good hearing that one of your favorite rock singers had a brain hemmorhage...Bret Michaels. I hear he's in critical condition. I hope he recovers and gets well again. Through following his career with Poison and seeing him on Celebrity Apprentice, he seems like a real friendly, down-to-earth guy. He's already had to deal with a lot...Diabetes, his daughter getting Diabetes, appendicitis. I hope he comes out of this OK.

One of my friends has been suffering from an eating disorder. It is something my friends and I have noticed all year-long. I'm not as close to her as some other friends, but it's been sad being on the sidelines and not knowing how to help. You tell her she needs to eat more, she shouldn't be losing weight like this, etc., but you just can't get through. She wound up in the hospital when her heart-rate dropped to the 30s. I guess she's been eating now and has recovered rather rapidly, and I hope her family sees that she really needs help now if they didn't know already. My friends and I went and saw her at the hospital and she seems to be doing well. But it's crazy to think that if she didn't get help, she could have died pretty soon. She's a hard-worker and has a bright future, so I really hope she gets herself back so she can realize her potential.

My GF had to go in for a series of tests relating to her heart. She was experiencing chest pains and a rapdily beating heart every morning. It's likely stress-related. But it was pretty worrisome nonetheless. Being healthy and in your 20s, you shouldn't have to worry about stuff like that.

I just noticed I have a small lump on my left forearm and a swollen lymph node in my neck. I probably should look into that. It's probably nothing, but you never know. It's scary to think that no matter what your age, you could be gone before you know it.
 

JNA

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Good Blood Lab Numbers -
A1C - 6.8
Cholesterol - 123 - however I am on Lipitor, control my eating (NO dairy), & exercise.
 

kjel

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Asthma attack brought on by a mix of having a cold, allergies, and warm humid weather on Saturday. Few hours spent wasting away in the ER on Sunday morning. Full insurance coming soon so I can get all sorted out.
 

Bear Up North

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I just noticed I have a small lump on my left forearm and a swollen lymph node in my neck. I probably should look into that. It's probably nothing, but you never know. It's scary to think that no matter what your age, you could be gone before you know it.

Get that swollen node checked. Back in 1996 was when I noticed the same thing. The doc said, "Let's take it out and see, but it is probably nothing." It was something......and that something led to months of radiation, many turns with high-dose chemo, and the bone marrow transplant. GET IT CHECKED !!!

Bear
 
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