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Life-Threatening Illness & Reality Check

illinoisplanner

Cyburbian
Messages
5,334
Points
25
Get that swollen node checked. Back in 1996 was when I noticed the same thing. The doc said, "Let's take it out and see, but it is probably nothing." It was something......and that something led to months of radiation, many turns with high-dose chemo, and the bone marrow transplant. GET IT CHECKED !!!

Bear

Turns out the swollen lymph node was because I was sick. It developed right before I got tonsilitis and it has gone away now that I'm on antibiotics. If it comes back and it doesn't have anything to do with being sick, than I'll probably look into it.

My dad, who's always concerned about people's ailments and has had cancer and a stem cell transplant and the whole nine yards, thinks that the thing in my arm is probably just a cyst and is actually fairly commonplace, but it's worth keeping an eye on.
 

Bear Up North

Cyburbian Emeritus
Messages
9,323
Points
31
Procrastinating Bear Dance

This Bear procrastinates a tad too often. I will tell you tomorrow just how often. :-c:-o:D

I am now a happy 62-year old. I have never had a colonoscopy. I should have let the doctors have their wiggling way with me about 12 years ago. 50 is the recommended age for a colonoscopy.

With my health background (cancer, chemo, radiation, bone marrow tranny) I am most likely at more risk. I will be making my appointment. Time to get this done.

Ouch. Eww. Eek, Yipes. Careful..... Ouch. Ohhhh. Eek. Yousee! Whoa. Oh.

Bear Just Practicing
 

Otis

Cyburbian
Messages
5,170
Points
31
My experience was the only "Eww" moment was the night before's multi-stage, rocket-assisted "download." Well, that and the fact that one of the nurses in attendance was a friend who would know things about me that even I don't know. No pain, only a little awareness at one point, which the staff quickly dealt with. Nice pictureswhen it was all over.
 

JNA

Cyburbian Plus
Messages
26,964
Points
71
This Bear procrastinates a tad too often. I will tell you tomorrow just how often. :-c:-o:D

I am now a happy 62-year old. I have never had a colonoscopy. I should have let the doctors have their wiggling way with me about 12 years ago. 50 is the recommended age for a colonoscopy.

With my health background (cancer, chemo, radiation, bone marrow tranny) I am most likely at more risk. I will be making my appointment. Time to get this done.

Ouch. Eww. Eek, Yipes. Careful..... Ouch. Ohhhh. Eek. Yousee! Whoa. Oh.

Bear Just Practicing

Believe it or not several Cyburbians posted about having gone through having a Cscope.
http://www.cyburbia.org/forums/showpost.php?p=424486&postcount=418
 

kjel

Super Moderator
Staff member
Moderator
Messages
12,692
Points
46
This Bear procrastinates a tad too often. I will tell you tomorrow just how often. :-c:-o:D

I am now a happy 62-year old. I have never had a colonoscopy. I should have let the doctors have their wiggling way with me about 12 years ago. 50 is the recommended age for a colonoscopy.

With my health background (cancer, chemo, radiation, bone marrow tranny) I am most likely at more risk. I will be making my appointment. Time to get this done.

Ouch. Eww. Eek, Yipes. Careful..... Ouch. Ohhhh. Eek. Yousee! Whoa. Oh.

Bear Just Practicing

I took the ex to get his done. The worst part for him was drinking the dye stuff the night before. Once they gave him the happy drugs before the procedure he didn't remember any of the rest of it.
 

imaplanner

Cyburbian
Messages
6,672
Points
28
Just re-read this entire thread. I hope your tests go good Bear. As you know (I don't think I posted about this but I pm'd u about it) my wife was diagnosed with Hodgkins last January and went through ABVD, which is the standard. She was found to have completely responded during the mid-treatment scans, but recently had her regular three month follow up pet scan (the first one since finishing treatment) which shows Hodgkins returned. She now will be going through the stem cell transplant much like you did. I'll probably pm you with some questions at some point.



My wife just had her 1 and a half year post stem cell transplant scans and tests done. So far no evidence of any cancer having come back! Woo-hoo!
 

ofos

Vintage Cyburbian
Messages
8,278
Points
28
My wife just had her 1 and a half year post stem cell transplant scans and tests done. So far no evidence of any cancer having come back! Woo-hoo!

That's great! Here's hoping for complete and permanent remission.

Not so good for my MIL. Her lung cancer responded somewhat to the radiation therapy but the chemo was only effective at making her hair fall out so they've taken her off the infusions and want her to try a pill form. The C has gone from stage 2 to stage 4.
 

Hink

OH....IO
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16,615
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59
My wife just had her 1 and a half year post stem cell transplant scans and tests done. So far no evidence of any cancer having come back! Woo-hoo!

That's great! Do they check again at 3 years or further out?
 

The One

Cyburbian
Messages
8,286
Points
31
Best News!

My wife just had her 1 and a half year post stem cell transplant scans and tests done. So far no evidence of any cancer having come back! Woo-hoo!

This is great news!:) Now maybe you will participate a little more around here:r:
 

imaplanner

Cyburbian
Messages
6,672
Points
28
That's great! Do they check again at 3 years or further out?

Every 6 months until 2 years, and then I think its every year after - for the rest of her life I think (Bear could probably confirm my understanding of this). After 2 years they think the chances of relapsing will go down considerably - so we have one more checkup to go until they can make that call.
 

Bear Up North

Cyburbian Emeritus
Messages
9,323
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31
Every 6 months until 2 years, and then I think its every year after - for the rest of her life I think (Bear could probably confirm my understanding of this). After 2 years they think the chances of relapsing will go down considerably - so we have one more checkup to go until they can make that call.

imaplanner.....great news! :)

I had the BMSCT in early 2005. Went back to the University of Michigan Hospital every 6 months for a couple years. Changed to once a year for a couple years. Now on a 2-year schedule.....but this Bear procrastinates a lot :-c and I am way overdue.

Bear
 

illinoisplanner

Cyburbian
Messages
5,334
Points
25
My grandma is in the final stages of Alzheimer's. I just visited her in the nursing home today, and she can no longer swallow, has difficulty breathing, and can no longer speak. It's a painful thing to watch happen, especially to someone that was so good to you when you were growing up and now there is nothing you can really do to help them. They are trying to ease her pain and difficulties as much as possible, by giving her water, oxygen, and pain medication, but other than that, it's just a slow crawl towards the end.
 

Bear Up North

Cyburbian Emeritus
Messages
9,323
Points
31
My grandma is in the final stages of Alzheimer's. I just visited her in the nursing home today, and she can no longer swallow, has difficulty breathing, and can no longer speak. It's a painful thing to watch happen, especially to someone that was so good to you when you were growing up and now there is nothing you can really do to help them. They are trying to ease her pain and difficulties as much as possible, by giving her water, oxygen, and pain medication, but other than that, it's just a slow crawl towards the end.

So sorry to hear, ip.....my older brother, just 5 years older, has been in a rest home for 3 years for the same thing. So sad, because there is nothing you can do or say.

Bear
 

illinoisplanner

Cyburbian
Messages
5,334
Points
25
My grandma is in the final stages of Alzheimer's. I just visited her in the nursing home today, and she can no longer swallow, has difficulty breathing, and can no longer speak. It's a painful thing to watch happen, especially to someone that was so good to you when you were growing up and now there is nothing you can really do to help them. They are trying to ease her pain and difficulties as much as possible, by giving her water, oxygen, and pain medication, but other than that, it's just a slow crawl towards the end.

My grandma just passed away today at the age of 92. I'm glad she's not suffering anymore. It was hard seeing her in that state the past few days. Nevertheless, I will miss her and all the good times we had.
 

Gedunker

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51
Sorry for your loss illinoisplanner. You and your family will be in my thoughts over the coming days.
 

Tranplanner

maudit anglais
Messages
7,943
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39
Sorry for your loss Ip.

My uncle passed away last night as well (89 years old, WWII veteran).
 

imaplanner

Cyburbian
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6,672
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28
My grandma just passed away today at the age of 92. I'm glad she's not suffering anymore. It was hard seeing her in that state the past few days. Nevertheless, I will miss her and all the good times we had.

Sorry for your loss man. But I have to say that we should all be so lucky to live to 92
 

Whose Yur Planner

Cyburbian
Messages
12,176
Points
48
My grandma just passed away today at the age of 92. I'm glad she's not suffering anymore. It was hard seeing her in that state the past few days. Nevertheless, I will miss her and all the good times we had.

Sorry IP for your loss. My grandma is still hanging in there at 91, so I'm lucky. Again, sorry for your loss.
 

kjel

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Sorry for your loss ip. She's at peace now.
 

TerraSapient

Cyburbian
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2,588
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17
sorry for your loss IP. My Nana had the same disease and passed away a few years ago. It is a terrible affliction to endure for everyone in the family. All the love in the world to you!
 

Hink

OH....IO
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59
Sorry for your loss IP and Transplanner.

My great aunt fought for almost two years with Alzheimer's and it was a painful journey to watch such a talented piano player not be able to move her hands where she wanted them. It is little consolation, but know that it is a much better place where they are at now.
 

ofos

Vintage Cyburbian
Messages
8,278
Points
28
Sorry about both your losses, Ip and tranplanner. I understand about the Alzheimers. My grandmother lapsed in senility after my grandfather passed away. She went from being one of the sweetest ladies into a profane one who mistook some of her grandchildren for her children in her more lucid moments. I'm glad that I have good early memories of her because the woman I last saw alive in a nursing home wasn't my grandmother any more.
 

illinoisplanner

Cyburbian
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25
Thanks everyone. She is indeed in a better place now, reunited with my grandfather (her husband), and my aunt (her daughter), and many other relatives.

And my sympathies to you, Tranplanner, on the loss of your uncle as well.
 

Planit

Cyburbian
Messages
14,507
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57
sorry transplanner - I totally missed yours but thoughts are with you as well.
 

JNA

Cyburbian Plus
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71
Sorry about your losses illinoisplanner, and Tranplanner.
 

imaplanner

Cyburbian
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6,672
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28
So I've mentioned my wife had hodkins lymphoma, witha recurrence and she went through a bone marrow stem cell tgransplant. Everything is looking great for her, no sign of relapse after 1.5 years now. So I've been having some swelling and lumps in my neck (similar to what she first presented with) for the last couple months, got a ct scan, the doc is scheduling me for a biopsy but says he thinks it might be lymphoma:-c. Sure it might not be, but it very well could. I wondering if there is something in our drinking water, or in our house? :-o
 

illinoisplanner

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That's not good, imaplanner. I hope everything turns out OK for you.

Oh and just as an edit: After my dad had kidney stones and cancer, we switched to bottled water and a Brita pitcher for the dog's water and the coffee maker. And things have been alright since. :Knock on wood:

So, it wouldn't hurt you to not drink the tap water and have it checked. And check some other things.
 
Last edited:

Hink

OH....IO
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59
So I've mentioned my wife had hodkins lymphoma, witha recurrence and she went through a bone marrow stem cell tgransplant. Everything is looking great for her, no sign of relapse after 1.5 years now. So I've been having some swelling and lumps in my neck (similar to what she first presented with) for the last couple months, got a ct scan, the doc is scheduling me for a biopsy but says he thinks it might be lymphoma:-c. Sure it might not be, but it very well could. I wondering if there is something in our drinking water, or in our house? :-o

Did you ever have your water or anything else tested after your wife got it? Radon maybe? I would test EVERYTHING. Sorry to hear that Ima...:(
 

Salmissra

Cyburbian
Messages
6,370
Points
37
My mom had surgery yesterday to remove a cancerous tumor from her breast. In addition, they take out the lymph nodes on that same side. Her nodes had tumor cells present, so she'll have to start chemo and then the radiation treatments. She is lucky in that it was caught very early, and hasn't really had a chance to do too much damage.

I spent the morning with her. She's doing really well - very little pain, color is good, had an appetite, and was complaining that she didn't need supervision. She does, though, because she's not a good patient.

Imaplanner - good luck on the tests. Get your water/etc tested, as suggested, just to be sure it's not an environmental cause!
 

Bear Up North

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imaplanner......not sure what to say.....a double-whammy. I am hoping for the best for you and continued good news for the sig other. Note that Hodgkin's Lymphoma is tough to figure. Risk factors are there but there is no history (that I know of) of environmental issues that could cause it.

Hang in there, dude.

Bear
 

JNA

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Messages
26,964
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71
Got 5 stiches in my back from removal of another cyst.

So that makes 2 surgically removed ;
1 lanced/drained w/meds;
and
1 infected/ruptured w/meds - all within this year.

Enough already. 8-! :-c
 

ofos

Vintage Cyburbian
Messages
8,278
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28
My MIL's lung cancer responded somewhat to radiation but not to follow-up intravenous or pill chemo regimens and she has decided to stop treatment. She's gone from stage 2 to stage 4 terminal over about 9 months and is trying to make end of life decisions, including hospice and a possible relo from CA to TX to be with us. Just have to do what we have to do...
 

imaplanner

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Messages
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28
My MIL's lung cancer responded somewhat to radiation but not to follow-up intravenous or pill chemo regimens and she has decided to stop treatment. She's gone from stage 2 to stage 4 terminal over about 9 months and is trying to make end of life decisions, including hospice and a possible relo from CA to TX to be with us. Just have to do what we have to do...

Sorry to hear that ofos. Thats sucks.

Was she a smoker? Ive been reading alot lately about how more non-smokers are getting lung cancer really badly than are smokers. Something about how smoking may actually help protect against certain pollutants in the environment by creating a protective mucous layer in the lungs?


So I've mentioned my wife had hodkins lymphoma, witha recurrence and she went through a bone marrow stem cell tgransplant. Everything is looking great for her, no sign of relapse after 1.5 years now. So I've been having some swelling and lumps in my neck (similar to what she first presented with) for the last couple months, got a ct scan, the doc is scheduling me for a biopsy but says he thinks it might be lymphoma. Sure it might not be, but it very well could. I wondering if there is something in our drinking water, or in our house?

The lumps in my neck seem to have actually decreased in the last couple weeks. The specialist my gen doc sent me to now thinks maybe wait another month and do another ct scan rather than biopsy. He thinks its not as serious as my GP (tentative great news!!). The GP freaked me out :-c
 

ofos

Vintage Cyburbian
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8,278
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28
Was she a smoker? Ive been reading alot lately about how more non-smokers are getting lung cancer really badly than are smokers. Something about how smoking may actually help protect against certain pollutants in the environment by creating a protective mucous layer in the lungs?

Former smoker, not sure how long ago she quit. If there were any beneficial effects they were overcome by nearly 40 years of breathing LA smog.
 

JNA

Cyburbian Plus
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26,964
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71
ofos - I kinda know what you are going throught -
I still remember 40 yrs ago what we as a family went throught when Dad died of Lung Cancer that had spread. :(
 

Veloise

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6,093
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38
My MIL's lung cancer responded somewhat to radiation but not to follow-up intravenous or pill chemo regimens and she has decided to stop treatment. She's gone from stage 2 to stage 4 terminal over about 9 months and is trying to make end of life decisions, including hospice and a possible relo from CA to TX to be with us. Just have to do what we have to do...

Reading this interesting blog, thought of you.
 

Whose Yur Planner

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48
The lumps in my neck seem to have actually decreased in the last couple weeks. The specialist my gen doc sent me to now thinks maybe wait another month and do another ct scan rather than biopsy. He thinks its not as serious as my GP (tentative great news!!). The GP freaked me out :-c

Good news Ima-may you continue to get more.:)
 

Bear Up North

Cyburbian Emeritus
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9,323
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31
Hodgkin's Stay Away!

This week marks the 6th anniversary of the beginning of my nearly one-month "vacation" at the University of Michigan Hospital, enjoying the fun of a bone marrow stem cell transplant.

Mr. Hodgkin's Lymphoma......continue to stay away from this ole' Bear.

:)

Bear
 
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